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Going to Hollywood!

17 Mar

Hollywood, FL that is. I know, misleading, but it’s fun to say and makes me think we are going to have fun. Now to get to my point.  My son has had cyclic fevers for 10 months and we are finally getting somewhere with a pediatric rheumatologist.  They (the doctors)  think it is Familial Mediterranean Fever and have started him on colchicine to see if that will help  with the attacks.

Part of my quest in healthy cooking and eating is trying to control his outbreaks and the symptoms, so far I have found very little information on this.  Even though FMF is genetic, I know a healthy diet will improve my boy’s quality of life and I will share anything that I find helpful here.  I am a firm believer that what we eat can help or hurt our bodies, and with a natural diet we can greatly increase our quality of life.

For anyone interested or curious, some of the symptoms are:  cyclic fevers every 16-22 days, lasting 1-3 days,  joint pain, stomach pain and loss of appetite.

*UPDATE*  My boy was HEALED!!!!! Oh yes, no doubt!   He had the genetic testing done and they found the FMF gene.  I did not like giving him the colchicine and a good friend told me to pray over the meds and there may be a time when he won’t take them any more.  This is not a disease that goes away, you take a pill every day for the rest of your life period.  A few months later, I didn’t feel right about giving him the medicine anymore and stopped it.  This was 3 months ago and I have a healthy, healed, thriving almost 7 year old boy!  Thank you Jesus!

 
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  1. Nancy

    April 2, 2010 at 7:36 pm

    I have FMF. Please see my story on my blog. Scroll to read NANCY’s Personal Experiences w/ FMF.

    There is an FMF Support group at yahoogroups.com Many adults w/ children who have FMF. Please join us.

    If I can answer any questions feel free to write.
    nmorri3924@aol.com

    Nancy

     
  2. admin

    April 2, 2010 at 7:49 pm

    Thank you for the info!